Rare Disease Information is Fragmented.
Many rare conditions have no standardized guidelines.
95% of rare patients are treated with off-label drugs.
Care management on genetic disease will be the same from different specialists only 50% of the time.
Our tools put information in one place for providers and patients to get the best care possible.
Founder and CEO Dr. Eesha Sharma grew up with an older sibling with an undiagnosed genetic disease.
At the age of 15 her sister was on several unnecessary medications, with severe side effects of obesity and depression. Through slow trial and error over several years her mother determined 5 medications were unnecessary.
“I remember being shocked the first time I heard a care provider tell my mom: ‘You are her most capable nurse because we only know so much.’”
The name Lamar is inspired by the science-fiction movie Gattaca where Dr. Lamar helps the main character become an astronaut despite his genetics.
Lamar Health’s mission is to support genetic providers in helping their patient’s to live their fullest lives.
Eesha Sharma, Ph.D.
Will Greenleaf, Ph.D.
David Stevenson, MD