Find research and treatments for your genetic disease.
Hospital software is set up so that it is really hard to search by diagnosis.
If clinical trials for a new treatment or research come up, your doctor doesn’t have a great way to find you.
Sign up to get:
- New treatment/clinical trials alerts
- New info on an Uncertain Variant to get to a diagnosis
- Learn from experts and patients like you
Built by Patient families, Geneticists, Genetic Counselors and Scientists at these leading institutes of excellence.
Video credit: Children’s Hospital Colorado